Today, MBB welcomes Dayna Steele, who faced a situation many of us will have to one day, if we haven’t done so already – caring for an elderly parent who is slowly forgetting who she is and what she’s here for and even, who her kids are. Dayna faced the challenge with what she describes in her own words as ‘friends, Facebook and a really big glass of wine’. Now her Facebook posts on what could have been seen as a tragic situation but turns into something which can be faced with love and even humour, are available for readers in book form.
What was your relationship with Alzheimer’s disease before your mother’s diagnosis? Did you have any preconceptions about the illness before you started this journey with her?
I like to think I am a fairly well educated and informed person. I knew what Alzheimer’s was and I knew it was called “The Long Goodbye.” Then the diagnosis – and I realized I had no idea how stressful, sad, irritating, confusing, etc this disease is. No one tells you the really rough stuff like the possible violence or cleaning up your own mother’s feces or any number of things like this. You also don’t realize how all encompassing it becomes physically and mentally until you actually have to live it.
How did the support of your Facebook community impact you through this hard time?
Facebook became my support group. My Facebook community gave me ideas, information, suggestions and laughter and love. And, once I wrote a particularly hard post, I would let go of the negative emotions. It was very cathartic to write and share.
When did you get the idea to turn your Facebook posts into a book?
Literally when so many people started commenting. “I hope you put this in a book.” In fact, the first couple of pages in the book are those words of encouragement from so many followers.
What are you hoping readers will get out of Surviving Alzheimer’s?
Someone once said to me there isn’t a users’ manual on what to do or what is going to happen when you get this diagnosis. I hope this book does become the manual for what to do and how to do it for caregivers everywhere.
SURVIVING ALZHEIMERS – with Friends, Facebook and a really big glass of wine by Dayna Steele
With unfiltered observations and sometimes dark humor, author Dayna Steele chronicled her mother’s journey with Alzheimer’s on Facebook. This collection of Alzheimer’s updates posted on the social media network includes biting humor and raw emotion as Dayna carries you from the diagnosis to the inevitable end. Also included are sections from a neurologist, Long Term Care insurance specialist, other caregivers, documents expert, elder care attorney, and an assisted living advisor. This is a journey way too many of us are going to experience in one way or another. If you have to experience Alzheimer’s and chances are you will – do it like Dayna with love, wit, and wine.
Get this book here: Amazon